https://www.facebook.com/mateodipgstrong
There was one more off labeled drug charged in energy form into his teeth, and this
seems to bring the situation to stalmate.
This sumps up 3 updates July 10-11, the latest video showing him even juggling peaches.
Well, it’s been a week since our last Mateo update. Overall Mateo continues to show that he is very strong. This week we spent mainly at home. He has been really getting back into his passion for crafting and art. We just love seeing him more passionate about things again. During the 2 days leading up to 4th of July he did 2-3 American flag inspired crafts each day and was very excited to do so.
The morning of the 4th we enjoyed a parade but most of the rest of the day he was pretty tired. We have continued to struggle with his dizziness and vomiting in the morning and more recently even before bed. Fortunately we made an educated guess and adjusted his med in the right direction so the last 2 days he has been able to lay nearly flat and hasn’t thrown up at all. His walking the last 2 days has been more off balance so he has needed us to hold his hand more.
He continues to nap at least once a day and doesn’t stay up long after his naps before feeling he needs to go to bed for good each night. A few days ago he napped twice and today he only napped once but got in bed 2 more times because he was very tired though got up to eat when he couldn’t fall asleep. The extra sleepiness has been making us nervous as we have seen many children sleep much more as they near the end. Despite him doing so well overall, we can’t let our guard down.
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