DIPG case, energy healing

https://www.facebook.com/kyraourangel/

She's having energy healing for already a week.

Progression, but still relatively good situation, at least considering recent success with GBM massive progression, there ishope to make a difference.

GBM and DIPG are actually the same for degree of aggressiveness, however:

--- DIPG is located in worst possible place in body, plus very confined space, allowing tumor to develop much less, to cause fatal situation

--- DIPG seems more heterogenous for different grade cells populations from 2 to 4 within tumor, which additinally protects it's stem cells - though cancer stem cells are not affected by any of existing official treatments overall.

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"Sorry we have been updated this page. It’s been couple of difficult weeks. Kyra’s Tuesday MRI shows tumor growth. Clinically she’s unable to walk by herself, suffering from ataxia (shakiness), left side facial weakness. We are sad to see her loose her abilities.

Doctor’s are recommending to do a second round of radiation asap to stop the growth of the tumor. We will find out more about the dosing in our next appointments.

 

Today is her 16th day from her third infusion. Kyra has had three doses of CAR-T. The last two doses have been through Ommaya in the brain. She was given 12.9 million and 30 million CAR-T cells. She has tolerated the doses surprisingly well. She had nausea and some headaches which were easily controlled by Zofran and Tylenol and no steroids. She continues to have nausea but no headaches. We have seen amazing clinical improvements after each CAR-T dose. We wish the cells could stay for longer and keep attacking the tumor"

 

There's nothing the CAR-T treatment is doing this time for her progression unfortunately, by energy scan.