"Vincent had clinic today. His counts all looked good and his liver labs
had some improvement. The liver improvement is most likely because he is
not on chemo but it's still good to see it come down. He has received
compassionate care approval for the drug we are hoping for him to start
but we still don't have a start date. He will have another brain &
spine MRI on 9/18. All we can do is pray and hold on to hope that his
cancer is gone forever..."ATRT is felt more aggressive, than even DIPG, worst cancer ever.
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