Another DIPG case, having full-time distant healing, update

 https://www.gofundme.com/drakewalker


Update, no growth evidently,no symptoms of disease.  
They made 9 months milestone mark, and with distant healing, there will be much more such milestones.

"Where we've been: 
9 months ago today, our 7yo son Drake was diagnosed with in inoperable brain tumor called DIPG. We have lived a lot of life since then! Drake went thru a surgery to place a shunt in his brain to help the fluid drain out properly. He also had a biopsy which helped confirm the diagnosis.He's had countless MRI scans. He then went thru 6 weeks of radiation (which is the standard protocol for DIPG). We participated in a clinical trial thru CHOC and dealt with the harsh effects of steroids. We then took the next couple of months for traveling, including a Make-A-Wish Disney Cruise to the Bahamas. We enjoyed the Holidays and we rang in the new year with style.

Where we're at: 
Since January, Drake has been involved in a clinical trial thru UCSF called CED, where a chemo drug is used to attack the tumor directly. Its a 2 day infusion process every 7 weeks and so far, he has been doing exceptionally well! We praise God for that victory! From Nov, he has been in a phase called the "honeymoon period" which is known as the time after radiation ends and before progression of the tumor begins. During this time, Drake has been symptom free! He functions like a normal, energetic 7 year old with lots of playtime and restful sleep. He is an asset to his baseball team and loves going to the park with Dad to play tennis or get in some batting practice. He has been loving being a part of his 1st grade class two mornings a week and getting in as much school time as possible with Mrs. Montrose. He is always up for a card or board game or playing outside on the trampoline. It is such a joy to see him doing all these things!! We thank God for Drake's abilities and resilience! He is both parts snuggly and sweet and fiesty and moody We love our boy so much, and we treasure each day with him!"